Marking an anniversary you don’t want to remember

The last few weeks have been getting to me. Set aside the pandemic concerns about family and friends going back to school, the lack of sales and in-person promotion options for my books and publishing business, and the loss of ability to safely go out into the world and interact with others. Those are all real concerns for me, but the past few weeks have grated on me for another reason.

It’s been five years since my late husband, Al, became suddenly ill with Stage IV colon cancer. I have purposely chosen to not remember the date of his emergency surgery or what day he came home from the hospital. I have not kept track of which days he was readmitted with complications or what day it was that he went back in for the last time. I wrote those details down long ago, mostly for his healthcare providers, but the dates aren’t in my head and I prefer it that way. The timeframe lives in my body though.

Even before a Facebook “memory” popped up with a photo I took when he came home from the hospital after surgery, I was very aware of this time of year. As the five-year anniversaries of these important events come and go, I feel my soul start to hurt again.

The soul, I’ve been told, remembers. The body – made mostly of water – remembers. There’s nothing I can do to stop that pain from flowing through my being and shaking me to my deepest core.

The memories of those moments and events have not come in a visual way, except for that one Facebook photo, which I subsequently hid and will someday delete when I have the emotional energy needed to look at all those photos again. The memories have arrived as more of a feeling that silently crept up on me. A tingling sensation on my nerve endings. A trepidation in my heart. An unexplained unsettled feeling.

Such is the ebb and flow of grief. Even when you are doing well in your life and having mostly good moments and good days, the body remembers and reminds you of the past. You feel in your soul the time of year when a certain event changed your life forever.

It took me a few days to come to terms with these deep-seated feelings.

“Five years,” I kept hearing in my brain. “Five years.”

I tried to ignore it. It would not be quashed.

It rose up like an anniversary that could not pass without some recognition of its significance. So here I am, acknowledging it.

I have survived five years since Al’s emergency surgery. I survived the unexpected worsening of his condition. I survived the unreal, frightening, sad, and peaceful moments of being with him in the hospice. I survived losing him.

For some reason or reasons, I’m still here. He is not, but I am.

It’s surreal and strange. There are times when I can’t believe it, yet I know it’s true.

Five years.

I look around and I’m alone. How did this happen?

But then again, there are many things I’ve done in my life that I can’t believe happened – most of them good and some not as wonderful. This too shall pass. Not the awareness of the finality of it, but the moment of grief. The sadness of recognizing he is gone will go away, but it will come back. Such is grief over the death of one you loved so much.

My head has always known that he is gone. As time goes on, my heart is doing a better job of getting on the same page as my head.

It’s been almost five years since cancer sucked much of the laughter and joy out of my life. That joy was wrapped in the form of a tall, strong, jovial man who is no longer with us. It’s been a heart-wrenching, horrible, complicated, lonely journey for the most part, but I know I've made it through the worst of it.

I knew I’d figure out how to be okay. I also knew it wouldn’t be easy.

I am grateful to family, friends, and bereavement counselling sessions for helping me make it this far. I have read book after book. I’ve journalled and cried and exercised and napped. I have talked and talked and talked with anyone who would listen, even after many of them stopped wanting to hear it. I have stared at the television for hours on end, looking for a respite from my agony, from the thoughts in my head, the hole in my heart, and the fears and emotions bubbling to the surface.

Taking one step at a time, with my own inner demons and thoughts, I’ve made it this far. And I plan to keep going.

Losing him became my measurement for today. What's happening at this moment, and how does it compare to that loss? So far, nothing has come close to that devastation, for which I am grateful.

When Al became ill, he chose to fight. We had been together for four decades. There was no question that we would fight his cancer together. We followed doctors’ orders and lived in the moment as much as we could. We chose to not live in fear. It was the best way to live. It is the best way to live.

We dealt with what was in front of us – the things we could control – and we let go of the rest. It is easier to do that when a life-changing situation hits you in the face and you have to set aside much of your daily routine to focus on the moment. "Living in the moment" doesn’t have the same immediacy when things are going along smoothly, but it is important. Crucial, really.

We laughed. We loved. We hugged and enjoyed each other’s presence. Al told stories and teased us all until the illness robbed him of energy and life. I recorded some of his best stories and the conversations he had with visitors at the hospital so I could look back at those videos someday and smile. That someday is not here yet.

Five years is too soon for me to watch videos of what I've lost. I've managed to listen to a voice recording from 2012 during which I rolled my eyes at his strange sense of humour. When I hear that recording now, it makes me laugh. Sometimes when it pops up in my music feed on my phone, though, it hurts and the tears come. My loss is still profound, affecting most of the moments of every day, but I am okay.

I have carried on and added to my life after loss with some new friends, new social activities, a foray into the dating world (the jury is still out on that front), and a better grasp on what I am willing to accept and dismiss in this precious life of mine.

It’s one of the many lessons I learned from Al’s death. I not only need to set better boundaries for my own well-being, I need to be okay with the disappointment of others when I stick to my boundaries. I need to look after my own physical, spiritual, mental, and emotional health. I need to seek out the things that make me happy and spend my time with the people who bring joy to my life – from a safe physical distance or in other ways that I can manage during a moment.

It’s been five years, but sometimes it still feels like yesterday.

The bigger anniversary – five years since his death – is coming yet. But I think I’ll be okay with it.

I’ve learned that the anticipation leading up to a birthday, anniversary, or other major event connected to a deceased loved one is often worse than the actual day of the event itself. By talking about this anniversary, even in its loosest form without specific dates, I have taken away some of its power over my body. Maybe my soul can release more of that pain and bring forth more of the happy memories. For there is "a boatload" of them, as Al would say. A big, happy boatload of memories and stories. It's my job to keep those alive in my soul.

Getting Through the Holidays While Grieving

For the last couple of weeks, I've been thinking about writing a blog with tips on how to get through the holidays when you are grieving ... but I honestly didn't have the emotional strength to do that until now.

It takes energy to write and even though I've been a writer for the last 35 years, it's been a struggle to put words into order since my husband, Al, passed away almost three years ago. Colon cancer was the cause. Frickin' cancer.

Okay, enough about that. I am fine. Most days. I am carrying on the best that I can while missing him every day but being grateful for the life we had together.

I am fine.

But you might not be.

Grief can be heightened during special occasions such as birthdays, anniversaries, and holidays. I learned a lot about grief in my work as a journalist and in my reading and experiences after Al died. I wrote about these lessons a month after he died, and I will repeat some of the ones that are specific to Christmas, New Year's Eve, and other special occasions.

Be kind to yourself. It may be helpful to go to some events so you don't spend all your time alone, but give yourself permission to say "no, thank you" if it feels wrong to attend something on a particular day. For example, I did not go to our church's "quiet Christmas" service this year. I was not feeling sad for a change, so why bring sadness into a good day when I had experienced so many sad moments already?

Breathe. Take long, deep breaths, especially when you feel overwhelmed by invitations or expectations. For the first few months after Al's death, I often stopped walking - just stopped - and concentrated on taking three deep breaths - one ... two ... three - to regroup. There is scientific proof that deep breathing helps our body to release anxiety and stress. Taking some deep breaths is one of the easiest ways to keep going when you think you can't go anymore.

Left foot, right foot. In the early days of my grieving, this is the only way I could function - by telling myself to breathe and to put one foot in front of the other to get through this moment, then get through the next moment. Take one step at a time, make one decision at a time, and don't let others tell you what to think or do or how to feel.

Feel your feelings. If you feel sad or angry or upset or confused, it's okay to express it. It's okay to cry - anywhere. This doesn't mean you will feel this way forever. Bottling it up will delay healing and no one wants that. Do not apologize for how you feel. Apologize if you hurt someone while you are feeling, though. If possible, choose who you are with as you feel your feelings. (See 'Be kind to yourself' above.)

Rest. We concentrate too much on achievement and not enough on self-care. When grieving, self-care is essential. Rest does not necessarily mean getting a good night's sleep. That is elusive when you are in the midst of deep grief. If you cannot slow your overthinking mind enough to have a nap, try sitting in a comfortable chair or lying down for a few minutes. Close your eyes and turn off your brain for a short break. Rest.

Pre-arrange transportation. When grieving, it is important to have some control over your ability to come and go from parties and other holiday gatherings. If you suddenly feel overwhelmed or too sad to stay, have a friend or family member drive you home. Be careful not to drive when in the depths of grief as your mind may not be fully focused on the road. Be kind to yourself and others.

A bereavement support program gave me this helpful brochure:

The brochure's tips from Kelly and Karin Baltzell are:

• Pace yourself 
• To say 'No' is okay 
• Pamper yourself 
• Tell people what you need 
• Make new rituals 
• Honor traditions 
• Remember your physical needs 
• Tell others exactly what holidays are important to you 
• Crying is okay 
• Make action plans 
• Consult your family and friends 
• Lean on your faith

To help ensure our first Christmas without Al was a little less painful and full of dread, I suggested to our children that we each make a donation to a charity that we thought he would like. On Christmas morning, we celebrated his life by telling each other the donation we made, of cash or something else, in his memory and why we chose that charity. The amount of each donation wasn't mentioned. It was not important. We had contributed to a worthy cause in our communities in memory of a great man.

We smiled and even laughed. And we cried, of course. Tears of love.

I wish that for you this holiday season - that you get through it the best way you can while remembering your loved one and taking care of yourself.

Happy holidays!

What I’ve learned about grief

I apologize to every person I’ve ever met who has lost a spouse to death. I had no clue.

While I knew that your spouse died, I didn’t know the kind of mind-numbing, gut-wrenching, life-altering, hole-in-the-chest pain that you must have experienced after their death.

I didn’t know until now. And I’m sorry I wasn’t a more compassionate, helpful friend to you.

I have grieved the death of my father-in-law, my father, my mother, and several close friends and family members. The pain of those losses was severe, but I did not feel the same kind of despair and complete heartbreak that I have felt since January 4, 2016, when my husband, Al, died only four and a half months after being diagnosed with Stage IV colon cancer.

Al’s illness had no warning signs and his health went downhill quickly. He woke on the morning of August 20, 2015, with a pain in his abdomen. Emergency surgery found a fist-sized tumour on his colon, which led to a high-output ileostomy and numerous complications that required repeat hospitalizations over the next few months. Al passed away in a hospice bed in January, with me and several nurses at his side. Losing him has been confusing, frightening, surreal, sad, and so much more. It feels like a large part of me went with him when he died.

I try not to dwell on the discomfort he must have felt while so courageously and gracefully going through his cancer journey. (He hated the phrase “battling cancer”, so I try not to use it.) We had many beautiful, precious moments together during those last few months, but those are hard to remember when the pain is so raw.

I think about him every day, sometimes in almost every moment of every day. I know it is still early – only a month after he died – but sometimes the pain is so overwhelming that I can’t think of anything else. And I sit alone and try not to become consumed by the ache in my soul.

I try not to think of how empty my new life is right now. I struggle with finding a “new normal”.

I know, logically, that it will get better as I grieve and heal, but the heart doesn’t always work together with the brain, so I must go through this pain in order to move on. It is obvious that my journey on this earth is not yet finished and I need to continue to do the best I can to live my life to the fullest, while honouring Al and all that we worked for in our 42 years together.

I have learned a lot more about grief in the past month – from reading materials, by talking to family and friends, by attending a bereavement support group, and from experiencing it. I have also been reminded of many things that I learned in my years as a journalist about how to help others who are grieving.

What Not To Say To Someone Who Is Grieving:

“I know exactly what you’re going through. I know how you feel.”

No, you don’t. It is not possible.

Every human being is different and every relationship is different. Every grief journey is different.

You may have an idea of some of the feelings the bereaved is having, but you could never know exactly how they are feeling.

My relationship with Al and our time together before he died is very different from what anyone else experienced in their relationships. Plus, I barely know how I am feeling from minute to minute, so how could you know?

“Oh, I know. It still hurts ___ years later.”

Putting a time frame on someone else’s grief journey is not helpful. Every person is different and every grief journey is different. Phrases like this may also be an indication that you have work to do in your own individual grief journey and you may benefit from some grief counselling or support programs.

What To Say Instead:

“I’m sorry for your loss.”

“If you’d like to talk, I will listen.”

 “Can I give you a hug?”

“Would you like me to come over and just sit with you?”

 “Can I call you occasionally just to see if you need anything?”

What I have learned that has helped me grieve my husband’s death:

• Breathe. Long, deep breaths.
• Be kind to yourself. You did not choose this. You need time to adjust to this new reality.
• Rest often or have a nap. Grieving is hard work. Do not expect to accomplish much each day, at least for the first while. Give yourself a break.
• It’s okay to feel sad. It doesn’t mean you will feel sad forever. It means you feel sad now and that’s okay. Give yourself permission to feel how you need to feel.
• Wherever you are and whatever you are doing, it’s okay to cry. You don’t need to explain your feelings or to apologize for them. You don’t even need to understand your feelings. You just need to feel them and express them if and when you can.
• Give yourself time to grieve. Grief is not an orderly series of stages that lines up perfectly with any given time frame. Grief has been described as “a tangled web of emotions” and it may take months or years for you to untangle some of those feelings. That is absolutely normal. Everyone’s grief journey is different. Remember that you are doing the best you can with the situation you had or have in front of you. Let that be enough for now. Try to ignore or stay away from those who think you should be “over it” or moving on with your life before you are ready.
• It is normal to feel like you do not want to go on. Usually, that is a fleeting feeling that will dissipate with time. It is not normal to consider suicide. Seek professional help immediately if you are considering harming yourself.
• Seek out bereavement support, whether that be in the form of an organized support group with facilitators, a religious or spiritual leader, a professional counsellor, or books from the library. Take what you find valuable from those resources and don’t feel bad about ignoring the rest. One of my cousins started a “grief scrapbook” in which she pasted helpful newspaper articles, clippings, tips, and meditations to help her grieve her husband’s death. I use a notebook.
• Read a good book or listen to music to distract yourself or, in my case, to bring you some happiness. This is self-explanatory, but I do happen to know of a little Canadian publishing house that has some pretty great books (wink, wink). And music can soothe the soul.
• Watch TV or a movie to give your mind a break. I have a couple of new favourite movies that have helped me to grieve my husband’s death.
• Write your thoughts and feelings in a journal, either daily or whenever you feel the need or desire to write. Don’t worry or feel bad if your thoughts change. That’s what thoughts do. Your thoughts and feelings are sure to change as you grieve and heal.
• Write a letter to your loved one. This may be especially helpful if the death was sudden or there were some things that were left unsaid. I write to Al or to God almost every night before bed. Sometimes the letters/journal entries are tender and filled with longing. Sometimes they are full of pain and tear-stained. Often, they are both. Always, they help me heal a tiny bit more.
• Make a list of the people who have offered to help you. Look at your list and choose whoever you will find comfort in during a particular moment. Then call them to chat or ask for help. My list includes people whom I can phone and ask to stay with me so I won’t be alone for the first while as I grieve.
• Don’t feel guilty about not responding to and staying in touch with everyone who contacts you. Choose what you need to do and who you need to talk to and let the rest go for now. Focus on you.
• Leave your home at least once a day. Go for a walk or a bike ride. Go for a drive. Give yourself a change of scenery. Remember that there is still a world out there.
• When you are strong enough, go places in your own vehicle. Then if you suddenly feel you cannot stay, you have the freedom to leave without disrupting other people’s plans. Be careful to drive only after your mind is healed enough to concentrate on the road ahead – literally – and to remember how you got home.
• Try not to dwell on feeling guilty. You may have difficulty accepting that it is okay for you to continue living your life. My husband, Al, asked me to promise him that I would live my life to the fullest and not let his death consume me. I replied that I would try, but that it would take time. I’m not there yet, but I’m working on it. Grief counsellor Andrea Mackay of Greystone Bereavement Centre in Regina SK explained that guilt is “the little bully that we all have inside us. When that guilt sits on your shoulder, flick it off, and tell it to F--- Off!”
• Try to think of the good times and be grateful, but try not to let the uncertain future break you into more pieces. You will feel sadness about the loss of future good times, but keep putting one foot in front of the other and focus on getting through one minute at a time, one day at a time.
• Allow yourself to take a break from work, if you are able to do so, whether it is for a few minutes, hours, days or longer. I am blessed to be self-employed and grateful that I do not have huge financial burdens at this time. I am thankful that I work with patient, caring, compassionate authors who have become friends and who have accepted my need to work at a slower pace and give myself time to figure out the new face of DriverWorks Ink publishing.

Thank you to all who have helped me and my family in any way during these past five months since Al's initial diagnosis.

Thank you for your understanding as I take time to slowly heal. I feel your love and it is appreciated.

From:  https://www.etsy.com/ca/listing/184864560/be-gentle-with-yourself

(You may be interested in this post from April 2017: Living My Life After My Husband's Death - Cherishing My "Big A".)